Quotes from Simons VIP Parents

“We would do this 100 times over. It was a positive experience. Everyone [in Houston] treated us well... they brought in the best of the best. We were impressed with everybody. Everyone was very informative, very open to speaking and answering our questions. I was worried about testing all day with a son with anxiety issues. We were given appropriate breaks; it couldn’t have been done any better.” - Michelle, mom to Jack (16p11.2 del)

“We had a great experience in Boston and the team was super friendly. I really felt like we made some new friends, they were so supportive and understanding. Alyss and Maddy formed a bit of a bond. Maddy was sad when we left her.” - Kaitlyn, mom to Madelyn (16p11.2 dup)

 

“Our experience in Seattle was absolutely wonderful. We are so thankful for this opportunity. The team was super!!!” - Christie, mom to Raylin (16p11.2 dup)

 

“All and all it was a great trip! The team in Seattle went above and beyond to make sure that our visit was smooth. They made us all feel very at ease. Although there is still so much to learn about 16p, I feel I left Seattle with a better understanding of my Ashley. I want to thank you for allowing us to be a part of this study. I truly feel blessed.” - Melissa, mom to Ashley (16p11.2 dup)

My kids loved everyone there and all of us were so comfort-able. Cinco still asks if we can go back and visit "our new friends in Seattle". I am grateful that the doctors spent so much time with my children and were able to direct us to helpful resources. It was a great learning experience for all of us. - Deborah, mom to Cinco and Theo (16p11.2 dup)

Simons VIP has picked the crème de la crème to conduct their study. We could not have had a better experience. We were treated with such sincerity and compassion by the Boston Team. We absolutely loved Dr. Hanson and Alyss!! - Karen, mom to Daniel (16p11.2 del)

After feeling quite alone with such rare testing results and limited information available to us, we have now been put in touch with many other families who share a similar story. We are looking forward to developing friendships, as we learn about the link we all share. - Leah, mom to Khobi (16p11.2 dup)

 “Our visit to Seattle was great!!! The team there was very efficient and worked really hard to make things as easy for us as possible. We had received a schedule of events ahead of time and therefore we knew what to expect. Things moved along as planned, and there were no surprises. They had thought through every step of the visit and had everything taken care of. From the time we arrived until we departed, all of our needs were met. The team did everything they could possibly do to make sure the visit was as stress free as possible. Our family really loved meeting everyone. They made us feel completely at ease. They were so nice; it felt like we had known them forever. This was such a wonderful experience for my family. We feel completely blessed that we had this opportunity. We are so ex-cited about this research. We are looking forward to connecting with other families and gaining more knowledge about the 16p11.2 deletion.” - DanYale, mom to David (16p11.2 deletion)