Registration
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Simons VIP Online Research & Community Registration:

By completing the following registration, you will be able to access additional helpful features on the Simons VIP website (such as "Ask an Expert", "Discussion Forums", detailed educational materials, and much more). However, completing registration does not enroll you into research participation. Once you register below, a Simons VIP Coordinator will contact you using the information you provide to discuss any interest you might have in research participation.

Registration Type


There are two types of registration on Simons VIP Connect:

 

  • As a community member, you will have access to our discussion boards, ask an expert feature, newsletters, and other exclusive community features.
  • As a research participant, you will have access to all of the community features, but are also indicating that you are interested in learning about research opportunities that can expand our knowledge of your genetic change.

Account Holder Information

The person entering the data who is 18 years or older (Parent/Legal Guardian)


Information for: Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration.
Information for: Confirm Email : <p>Please confirm your email address by entering it again.</p>

Contact Information


Information for: Profile Type : Choose Your Profile Type
Information for: Province (Outside USA) : For non-USA addresses.
Information for: Allow other families to contact you? : <p>Selecting “Yes” will allow users to search the community based on username, diagnosis, gender, age and geography (no other personal identifiers are shared). Users will be allowed to send you a contact request through the system. You will only share personal information if both users agree to connect. You are only able to search the community if you allow others to search your information.<br /> If you do not wish to receive communication from other Simons VIP Connect members, please select “No.” You may update this setting at any time by updating your profile.</p>
Information for: Preferred Method of Contact : <p>Please indicate how you would like the Simons VIP Study Coordinator to contact you to discuss research participation.</p>

Login Information

The login credentials that will be used to log onto the site.


Information for: Username : PLEASE NOTE: Your username may be visible to other members.<br>Please enter a valid username.  No spaces, at least 3 characters and contain 0-9,a-z,A-Z
Information for: Password : Please enter a valid password.  No spaces, at least 8 characters and contain at least 1 lower-case letter, 1 upper-case letter, 1 number, and 1 symbol character
Information for: Re-enter Password : Please enter a valid password.  No spaces, at least 8 characters and contain at least 1 lower-case letter, 1 upper-case letter, 1 number, and 1 symbol character

Please type in the characters from the box below into the space provided to validate your registration.

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