04 - Individual Feedback

 

Dear Family,

We are excited to announce that for the first time we are providing individual results for families participating in the online Simons VIP research.The results are summarized in our new “Feedback Reports” which are now available on your child’s profile.

Which results are available? The CBCL, or “Child Behavior Checklist,” is a survey of emotional and behavioral concerns in children that is completed by families on a 6 month or yearly basis (depending on the child’s age). Results for other surveys will be available in the coming months.

Where can I find these results? To review your child(ren)’s Feedback Report(s), log in to your account, select your child from your Family Dashboard, and look under their “Attachments” tab (please see below for an example). You will be able to download the report from there.

Reading the graphs: Before you review the report(s), we strongly encourage you to watch the following webinar to help you understand how to read the graphs included in the report(s).

Webinar: https://www.youtube.com/watch?v=7rSnFM0uZDw

Why doesn’t my child have results? For some children, we are not yet able to share results because we don't have enough participants in their age group with the same genetic diagnosis. As more families with children who are the same and and with the same genetic diagnosis participate, we will be able to share results specific to those individuals.

Please do not hesitate to This email address is being protected from spambots. You need JavaScript enabled to view it. with any questions or concerns!

- The Simons VIP Study Team

 

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